Last year was the first year we attended Rare Disease day. It was a wonderful experience and I'm so thankful to have gone. The more I talk to people the more people I find out that have a rare disease. It happens in so many families and some never get answers. They just came out with the video for this year and I wanted to share it!
You can go here to learn more about Rare Disease Day. I heard about running 4 rare a while back. I think it's amazing that people would go out and run for those that can't. I would love to be able to go and watch one day! You can check out running 4 rare as well as their facebook page.